Stella's Update on Matthew
on Sat 10 Sep 2011 22:57 BST | Permanent Link
As many of you know, Matthew has had a hard time, with at least 20 operations
and he is only 4. He was bron with TCHD, and a short gut. He had an illeostomy
from birth until he was three and a half. Many of the operations were due to
his stoma prolapsing. He was fed via TPN for the first year, and spent his
first 5 months in hospital. We trained for TPN and did that at home until he
was 1 year old.
He had his pullthrough operation about 12 months ago, and it was a bad time,
and we spent most of 6 months in hospital. We were unlucky as his gut stopped
working, and he was on TPN for another 6 months. Frightening is not the word.
BUT do read on...
He started school this week age 4, and he is in pants!! He is totally toilet
trained in the day, and is in every way "normal" to all his friends.
I would never have believed that when I was so worried about his life ahead
when he was born.
This is just to give hope to all the other parents who are starting on this
path. There is hope, a lot of worry too, but worth it all. We have a happy boy
who is singing for joy all day just now.
Keep strong x